Welcome
Carcinoid cancer has been considered a rare cancer for many years.
Today more and more people are asking "Is it as rare as we thought or rather
is it remaining undiagnosed or misdiagnosed?" Carcinoid tumors are the
most common of the neuroendocrine family of tumors. These tumors are unique
among other cancerous tumors. In addition to the tumor itself, neuroendocrine
tumors secrete hormones into the body which can cause damage to other organs
of the body.
The devastation of being diagnosed with cancer is compounded by the fright of
being diagnosed with a rare cancer. Almost everyone you meet will say "what
is that?!" Take heart, you are not alone.
There are hundreds of other carcinoid patients across the United States, Canada
and abroad. Every day new support groups are being formed to assist fellow "noids",
and their caregivers (family, friends and medical professionals) to understand
and deal with their disease. Take a look at the Other
Groups to find support groups in various areas. A new program has
been started entitled "Friend to Friend".
It provides a way to speak to someone who understands your situation and wants
to assist you in learning more about Carcinoid. You
can live with Carcinoid. Many patients have been leading active,
productive lives for many years since diagnosis.
Our group was formed in the fall of 2001 as a support group for New York, New
Jersey and Connecticut. We gather twice a year as a regional group to attend
the Carcinoid Cancer Foundation's seminars. These seminars include presentations
by informative speakers, knowledgeable in various areas of our disease. The
remainder of the year we meet as local chapters to gather information, promote
understanding of carcinoid and to support each other in whatever each person's
personal needs are. Please feel free to look around. We hope you will find our
site informative. Whether you are newly diagnosed, or a long time friend, check
our Tips for Noids for helpful hints and suggestions.
We welcome any questions, comments or suggestions.